PagetAlert

Shortening the pain journey

Our PagetAlert campaign has an ambitious target of £75,000 which will help us to address delays in diagnosis which can cause pain and anxiety for those living with Paget's disease and potentially lead to unnecessary complications, including pain, bone deformities and fractures.

Results of our recent survey* 
   ~45% reported >3 years to diagnosis
   ~20% waited >5 years for a diagnosis
   >90% reported that bone pain impacted quality of life
   2 in 3 stated that bone pain affected mental health

All our funding comes from donations and legacies so please support us by contributing to:
• reduce diagnosis time
• ensure pain is properly managed

*An e-survey was conducted by the Paget’s Association to gain deeper insights into the journey of individuals with bone pain before diagnosis. The response rate was 10.4% and data from 51-52 people was reviewed.

Please help - donate today!

11 January 2025 was Paget's Awareness Day

Driving earlier diagnosis and appropriate treatment

For Paget’s Awareness Day, 11 January 2025, the Paget’s Association produced a series of impactful interviews with individuals living with Paget’s disease, a rheumatologist and a GP. 

Professor Stuart Ralston emphasises the importance of early diagnosis. He highlights the challenges of delayed referrals and missed opportunities, and stresses the need for greater awareness of Paget’s disease within general practice. 

Help us make a difference

Your donations help us to change the lives of those with Paget’s Disease and every donation, no matter how small, is appreciated.